Methotrexate, Fail

Today was my big, post-chemo MRI. The lesion hasn’t changed. How unexpected!

[A little background since I haven’t posted in awhile: I completed two doses of 5 gram-methotrexate IV treatments, one in March and the other in April. My system metabolized the drug so quickly that I got out of the hospital in record time, first after three days and then two. I didn’t feel any side effects other than increased fatigue and dry skin, and my blood levels didn’t drop below normal levels. I waited four weeks after round 2 and six weeks after round 3–today–to see if the treatments made any real difference.]

Don’t know what’s going to happen next. My treating doctor outsourced me to his PA for the first time, so I’ll be meeting her tomorrow, i.e. I probably won’t know anything until his majesty deigns to see me next.

Now trying to decide which scenario is the lesser evil: getting another biopsy that yields nothing or going for the worst form of chemo, HiCY (high-dose cytoxan), that changes nothing. Pretty sure I’d rather have my head cracked open again, but I don’t think that’s the popular answer among the docs.

Random funny part: my internist told me that my last two treatments were 100x stronger than your average oral methotrexate dosing for whatever auto-immune disease. One of the main diseases it treats (orally) is RA (rheumatoid arthritis). And guess what? My joints still hurt the whole time! ha ha haaa

Emotional state update: result strongly suspected, no surprises, no tears and/or cursing. My body just loved getting that chemo. Seems to me my immune system is darn healthy!

Annoyance/anger/frustration update: being holed up in my room for a month after all 3 hospital stays–exhausted, with sun & fresh foods forbidden, having to stay home or wear a mask to go out–not ideal. Spending 6 months in treatment before getting no answer as to whether chemo works or not? Particularly unideal.

Positive-thinking update: as of about two days ago, I decided to force myself to be more positive and think healing thoughts while engaging in productive visualization exercises that will cure me. Since I’m not quite sure what’s lurking inside the Chairman, I will imagine many worms shriveling to their deaths. Or maybe ticks. Worrmticula returns (to die)!

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